Tag Archives: brain tumor

Undulations Ahead

17 May

Yesterday I worked late. Yesterday I was joyful with the people I encountered, who encountered me. Yesterday I thought I would be OK today. Yesterday I was wrong. I awoke this morning, May 17, 2017 and was instantly hit with the flashbacks to this day four years prior. The day I lost my son. Being hit with flashbacks is not a new occurrence; they come often. The difference in today is that the mere fact of the date takes me down. If I use a fighter’s analogy, I am quick on my feet and able to dodge the hits, normally. And then today’s date comes around and I am laid flat–it is the one swift blow. Back to the drawing board of training, but first I must make it out of my bed.

Today I struggled to eat. The struggle is result of knowledge battling feeling. I know my body needs nourishment. I know if I don’t eat a migraine will be triggered. I know these things. And yet I feel only sorrow and somehow it tricks my body into believing it’s nourished. I feel the headache and yet the flowing tears beg more attention than the aching in the cranial region. I avowed all day long to get my self out of bed and take a shower, brush my teeth, get something done. In bed I remain, even as I type.

Flashbacks don’t always give fair warning; they sometimes hit out of nowhere and command the fierce attention of reverting back to the scene of the pain. So many moments to revert to. Too painful to even write them down, even just the slightest. It is the dodge of the hit that compels me forward. I cannot handle the pain (quasi nod to Carly Simon here), I cannot live in its presence. This just might be me; others might have a different method or capability. But mine is the inability to dwell in the place of remembrances—can’t do it and live. Hence my stay in bed today, my swollen eyes and my bad breath (courtesy the omission of tooth brushing in bed). *my apologies to those who sat with me in my bedchamber today, the odoriferous scene was not a pleasant one.

At least this date gives a fair warning of its coming, much like the signs I read as a kid in my Aunt’s Sacramento neighborhood, “Warning, Undulations Ahead” – the word undulation has since intrigued me, what a beautiful word. Did you ever consider the letter “u” could be so fancy? I just love it! That there, folks, is my best attempt at getting up. Dodge the hit and counter attack with a distracting nonsensical statement. You see the sun is setting and I am looking into the eyes of tomorrow, when I will again get up and resume the fight. So though at present it seems the referee will make the count to “three” alongside my repose, I am actually still in the game and so I must shakily forge ahead—undulations and all.

I hate today. I hate this story that is mine. But tomorrow I will love, and joy again I will find.

Therefore strengthen the hands which hang down, and the feeble knees, and make straight paths for your feet, so that what is lame may not be dislocated, but rather be healed. Hebrews 12:12-13

Hungry?

27 Nov

It is the Sunday after the Thanksgiving holiday here in the USA and so it seems fitting at this time that I write about food and hunger, though this is a thought process that has been in the works for a while now…

When I was around nineteen years old I had the wonderful opportunity to live with my grandmother Ella and grandfather Greg for nearly a year. During that time, I became engaged to marry my husband and thus had domesticity on the brain. Living under the influence of Ella was fortuitous and her mark was evidenced in my own nuclear family for many years. She taught me many basics of cooking which lent their foundations to my spring-boarding recipes. And so my children, friends, nieces and nephews, neighbors and more knew me to be a creative and consistent cook.

*I have to take a side step here, for I know my mom (Margie) reads this blog and will be chiding the computer screen with a “hey, what about me?” type question. My mom is an amazingly creative and gifted culinary master in her own right. Unfortunately for her, I liked only white rice and plain pasta noodles during my formative years. Her cooking left me stuck at the kitchen table as a young girl for hours past the dinner meal, staring at and stirring my grub. I have vivid memories of her pea soup, which now I would relish, but then I thought was some ancient torture ritual and I the prisoner of circumstance. I learned a few tricks of the trade during that time–swallowing peas like pills so as not to taste them and lopping up my food with napkins, burying them down in the bottom of the trash “unrecoverable.” And though it would seem I am the reluctant beneficiary of her talents, I see her in myself and my preferences more and more. I am thankful for her influence though she didn’t find in me the opportunistic learner that her mom did. Now back to the story at hand.

I am winding down in my 27th year of marriage (anniversary in February) and for 23 years of marital bliss I had the circumstance and opportunity to provide meals for my household always with a nutritional and creative lens. I viewed the kitchen as my “lab.” Understanding the chemistry of ingredients and how they react one with another lent for some masterpieces and some flops. I came up with creative ways to serve my husband and children vegetables that they found palatable as well as low-sugar desserts and some high sugar ones as well. Under my grandmother’s influence I started off the culinary arts with a high fat dependence upon butter, cheese and Campbell’s soups. But the more ground I gained as dietician to the Bent family, the “Margie factor” crowded out the Ella influence and hydrogenated fats in the soups were replaced by a love of olive oil and international ingredients. I studied nutritional journals and published papers, kept charts of the nutritional values in different vegetables, fruits, grains and meats, and used this information to better understand the influence food has on the body. I took inventory from my troops of the nutrients they consumed in a day and planned menus to provide variety and diversity of ingredients for the holistic picture. I believed (and still do) that our nutrients are best derived from food and not supplements, so diversity of food has been key in healthy living.

*I must side step again as I find it so ironic when I write or speak about my views on health or faith, because my son died of a brain tumor so I realize that my investment in food and prayer are not exactly the poster child one hopes for, as far as outcomes are concerned…sometimes I wonder if I should have embraced soda and fried chicken! Forgive me as I digress.

Getting back to the subject at hand, which the mention of my deceased will help me to do, is to say that I have spent a good and consistent part of my life creating and being inspired to cook. Which is why, since the loss of Cole, I find it strange that I don’t even feel hunger. My creativity is lost somewhere inside of my struggle to live in loss. My palate craves nothing and my body needs little. This is not to say I dislike food, on the contrary, I do like food-I guess. But my taste is simplistic at best. I am satisfied by an avocado for lunch. Or fish and rice. An artichoke for breakfast along with my coffee is more satisfying than an iconic spread. I now walk the produce section of a grocery store in wonder, with no inspired thought. Oh yes, I know I enjoy sauteed mushrooms but with what? I don’t know and don’t care. I don’t want pasta, but bought a package to have on hand this past week for my young cousin who was visiting. My husband is often eating cereal for dinner as I have no offerings to provide (unless in his ambition he heats up a hotdog and canned beans) and prepackaged meals gross me out. Even salad, usually a favorite of mine, is common place. I assemble one often for lunch because I know this is the type of fuel that works well for my constitution but I don’t crave a certain type. I even find that during the holidays, when hosting at my house, I struggle to think of what others would want and enjoy. I don’t snack and my beverage of choice is water. By my own assessment, I have become quite dull. In full disclosure, this past week I did eat 7 sticky buns (Ella’s recipe courtesy my sister who keeps this family recipe/tradition alive) but declared it my dinner and left everyone else to fend for themselves. On Thanksgiving I bought the ingredients to ensure the traditionalists were happy, but I myself, had not one bite of turkey and ate very little from the side dishes as I felt no pang of hunger. In fact as I sit here and write, Brian (my love) is asking if I’d like a stuffed potato for dinner–his treat courtesy the local barbecue restaurant–to which I give an emphatic “no!” …I’m not hungry and I don’t want to eat.

Living in loss, with loss, can make one feel quite lost. The person I have known myself to be is missing and with her is the desire for food. I eat out of a knowledge base to fuel the body (except for the sticky bun extravaganza which is more of a nod to past practice than anything else) and prefer to have food in its natural state such as rice, fish and vegetables (and I suppose a potato would work). When I think I am craving a food, as soon as I see it, the desire dissipates. I am not fond of this disconnect. But then again I am not a fan of this life without my son in it. So there you have it, my soapbox on food, hunger and grief just as my husband asks me again with a boy-like enthusiasm “are you hungry and ready for dinner?” I of course restate my first answer, but in yielding to the knowledge that fuel is a necessary agent for living, relented and promised to wrap up this post so we can talk dinner (or he can talk rather). I think in this regard a fairy god-mother of food would be helpful for me. I need a Rivka in my life who will assess my nutrient intake of the day, prepare the food I should eat, and tell me it is the only option. Sounds like I need a mom! I suppose this is a maternal retribution, Margie’s revenge…for I scorned her culinary influence once upon a time. Oh irony how thee doth sting.

Stuffed potato anyone?

Age Is Just A Number

25 Sep

We have all heard the longstanding cliché, age is just a number. It is the typical go-to saying when someone advanced in years (whatever that means) acts in a manner, whether playful or foolish, usually reserved for youth. A somersault on the grass performed by a sixty-something year old, a cannonball splash by a grandparent with targeted intent, or in my case a McDonald’s “Happy Meal” on the rare occasion I crave junk-food and can’t pass up the toy prize. Whatever the case may be we engage the right to act outside of our number by calling upon the quip.

Yet as a mom navigating this new life of one living child, age is NOT just a number. It is a scary question presented to me in new social settings. Do you have children? Yes, an easy enough question to answer…I have two, a boy and a girl. How old are they? This second interrogatory statement is not so easy to avert, though avert it I try–

Person: How old are they?
Me: My baby is almost 21 years old.

I lead with “my baby” to imply that my other child is obviously older, a tactic I use to hopefully satisfy the question and move on from there. I am happy to report this technique is often successful, because I then respond with a “re-direct” of sorts–

Me: My baby is almost 21 years old. Yes, I am older than I look. And you, what was it you said you do again? OR, tell me more about that project your involved in. OR, tell me about your children, what are they into? Sports? Art? etc.

Re-direction is my safety net because with my daughter coming up on 21 years of age this Fall, she will, within the next year, surpass the age her older brother lived up to. Yes Cole lived only 22 years on Earth and his baby sister is gaining ground upon him, which is weird as they were nearly 5 years apart. It is also a difficult task for me to undertake, accounting for Cole’s age. He would be 25 years old according to our earthly calculations. But since he no longer inhabits earth is he still aging? Is he 25? Is he 22? And if he’s stuck at 22 how do I answer the question when he is supposed to be the older of my two children, when his baby sister becomes older than he? Do I change his name to Benjamin Button?

My Averting Plan is flawed.

In fact, this past month I attended a lovely gathering with wonderful people where my typical line failed me. We were all new to each other and so the opportunity was ripe to ask personal questions. Now please keep in mind I tend to be a master of the re-direct, so the fact I was caught and cornered fell upon me with some surprise. No matter how I skirted the topic of my children, this new acquaintance circled back for a landing. Finally, exhausting all averting techniques, I fumbled and gave some sort of sloppy response such as, “My son is in Heaven, he left us at 22 years and I don’t know how old he is currently.” Super party foul! Thankfully a watchful friend came to my rescue, though not in time to completely prevent the mess my statement made. She was able to jump in and take the conversation in a new direction–whew!

I imagine loosing a spouse presents a similar social incongruity. Are you married? The widow/widower is put in the tough position of facing the inevitable. This not only forces the opening of a wound, but creates a divide within a social situation where joyous enthusiasm is roaming free. Let’s face it, death is not usually invited, nor welcomed, to a party. And honestly I am trying my best to keep it at home.

But what is a mother to do when age is NOT just a number? When it rules my story and is tough to avoid? I don’t have the answer at the moment, I am too busy averting!

Cole Bent and mother

Cole at 18 years still hanging with his mom, me.

 

 

 

 

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