Tag Archives: brain tumor

Respite-ting

13 Oct

Today I am theoretically covering all mirrors and clocks.  Today I am living a wish fulfilled.  A wish I have longed for since May 17th 2013, the day the hand of the Lord reached out to my son and offered him peace.  A wish for silence, a wish for life to stop, a wish for rest.  Today, I am respiting.  And I am thankful.

I have no plans.  I have no need to shower.  I have no need to speak.  I have no need to change out of my pajamas.  Today I am quiet.

Today I have time to ponder ridiculous notions such as, “I wonder when the next earthquake will hit?”  Or, “Why so many spiders?”  Today, I even considered picking up a book and reading.  I even feel inclined to read an email from a friend, who back in June, sent me her reflections,  A Story of Cole, which up to this point I haven’t had the strength to read.   …today is nice.

I have been given the gift of a four-day weekend.  Esther is at work, Brian at the Rose Bowl, and me at home alone with no thoughts of having to begin my work week tomorrow.  Yay.

Yesterday I had to attend a baby shower.  I was part of the cooking crew and therefore had to get things done.  Coincidentally, the shower was held in the same location as that of my son’s funeral reception.  That was a tough assignment, but navigated with the concentrated focus on the mother-to-be and her happy occasion, her growing boy inside.  The hired assistants were a mother and daughter team.  They were part of our clean up crew, and very warm and hospitable women.  Unbeknownst to them, they shared with me the last time they were hired to help clean up after a “party.”  They explained to me it was for a funeral, and the flowers were beautiful.  This conversation came toward the end of the baby shower, when we had been working alongside eachother for a few hours.  I said to them, that funeral was for my son.  The gracious mother began to cry and hugged me, explaining that she had seen a photo of the young man with beautiful eyes, not realizing he was my son.

And then, she explained her own loss of her first born, her one and only son.  He was diagnosed with Leukemia at the age of 19 and died one month later.  That was 6 years ago.  She explained how her lovely daughter had lost her best friend, her older brother.  And they both were sad for me, for the newness of my loss, for Esther, and for us–us being, all women who have lost a child, all families who have lost a significant member.  A club neither of us wishes to be a part of.

She praised me, this lovely woman whom I would have never known was my kindred, for my ability to smile…

I have gotten used to having to put on the mask of ‘whatever the occassion requires’.  I have gotten used to life forcing me to live and put one step in front of the other.  I have gotten used to smiling for the purpose of spreading joy and allowing joy to be fulfilled.  And so it was, at the baby shower, that I was able to focus on the blessing of the birth and mask my sorrow further.

Oh Esther and I did shed some tears, out on the street, away from the festivities.  And I did receive the comforting condolences of the new found friend with tears in my eyes.  But I quickly blotted my cheeks and resumed.

But today…I don’t have to pretend.  Today, I am given the gift of pause.  I like today.  I can also appreciate better my gift as I have next weekend to look forward to.  Next weekend I go away for my annual ‘girlfriend weekend’.  A tradition my long time friend and I began when our children were young.  We are both in a place of transition and that will make our weekend together a blessing.  A time for us both to just be.  We don’t have to pretend with eachother, and that will be good.  Ironically, even our destination will be different.  Change is the theme of this year!  Two weeks ago we received a call from our hotel alerting us that they have been sold and will be under renovation.  So after a good 10 years of staying in the same place, in the same room, we are being forced to explore a new adventure.  And in years past this would have thrown us for an emotional loop.  But not this time.  This new direction, given our circumstances, just seems par for the course (I can’t believe I am borrowing a term from a sport I loathe–golf.  Oh well, so be it.).

Today I reflect on many things…

My aunt who lost her husband the month before Cole had surgery.  I understand her rejections of offer to travel.  Home feels right, home is a comfort.  My cousins neighbor, who lost her fiance in the attacks of 9/11.  I understand her emmigration to California from New York, her need to escape the pain of her loss and I understand that though she has just welcomed her second baby into her California family, her love for her fallen remains.  I think of the family whose young freshman daughter collapsed and died while running cross country for her high school, this time of year back in 2007.  I understand that though it has been a few years since the tragic loss, the sorrow that results takes years to adjust to.  I reflect upon the rippling that ensues upon a family unit as result.  I know all too well my own rippling.

And yet, it is my aunt from whom I draw strength.  For while in her sorrow, she has remained available–even hospitable.  Strength from the hired help, whose warm presence would never have given their own loss away.  Strength from the neighbor whose courage is reflected in her new life.  Strength from so many who suffer and who do not allow sufferings touch to define all that they are.

Most days, I am surviving.  But today, as I am given a respite from the ‘having to’, I can thrive just a little bit.  My “covered mirrors and clocks” are gifting me the pause I have been longing for.  Today is ok.  Today, I am ok.

Today I am thankful.

 

my Jameson

29 Sep

I am not a drinker of alcohol.  I drink water regularly and enjoy my two carefully measured cups of coffee each day.  But alcohol, including wine, is something I’m just not a fan of.  And yet…

The week my Coley passed away, I could not sleep at all.  Now the one alcohol I knew would help the insomnia was whiskey.  I have not had trouble with whiskey in the past.  Primarily because one shot is all it takes to put me down.  Down as in, to sleep.  So one of my dear friends brought me over some whiskey, in a plastic water bottle.  I had a shot and sure enough went right to sleep.  But awoke at 1:30a.m. with the same despair as before, only with a slight tinge of a headache.

A headache from whiskey?  Not something I was accustomed to.  But the whiskey was a lower end product (I am honestly unable to remember the brand right now) and I attributed the slight ache to the cheap brew.  Yes, my body is particular to quality.  My palate? No.  For any and all brands taste the same to me–like junk!  I really have no pleasure in the flavor of any type of alcohol, whiskey included.

So I gave the “water” bottle back to my friend to replenish her supply.  And then off to Europe we went.  And then off to Japan.

While in Japan my sister and brother in law came to stay with our daughter for a few days.  And knowing my struggle with sleep, and the nightmares that were keeping me up (even the nightmares while awake) my brother-in-law bought a bottle of good whiskey for me to have on hand…Jameson.

That bottle is still unopened in my kitchen cabinet.  I have decided that now is not a safe time to open it.  Why?  Why wouldn’t an opened bottle be safe in my house?  Especially when I do not like the taste?  Because life right now is hard.  Facing each day from a mourners perspective is fragile.  And because the sorrow of our loss is so great, so prevalent still, and because the call of the spirit-filled elixir is upon me, I’ve decided the bottle remains closed.

My filled-to-the-top and ready to serve, Jameson, will wait its turn.  And when it’s opened, perhaps it will be amongst friends and family who will help partake in a small portion causing no harm to themselves or me.  Right now it reminds me that healing is not yet mine.  Healing from the loss, healing from cancer’s touch, healing from the hardship as result of Cole’s brain tumor.  Not mine, not yet.  And neither is the whiskey.

Now I can, on occasion, have a sip or two while at a friend’s house or family member (my other brother-in-law happens to love Jameson).  That is a different scenario.  But in my house, the bottle will remain closed.  The road that its opening beckons me to is not a safe one.  Is not a road I wish to, now at 43 years of age, traipse upon.  I miss my son too much.

So what do I do, in the meantime?  Well as soon as I post this note, I will go to my kitchen (my laboratory) and create something out of almond meal, lemons, strawberries, and some good cinnamon-sugared pecans.

Now cake I can handle! 😉

mourning

Cole’s empty room

mourning

Missing my son, a look inside

 

My Many Hats

8 Sep

I have a collection of hats.  Some of which belonged to my grandmother, Ella, from the 1950’s and beyond.  Her collection, in particular, is special to me.  I am able to keep Ella with me, though physically her absence is felt.

vintage hats

A few of Ella’s collection

In many ways, I wear different hats throughout the week.  I am speaking metaphorically, of course.  The hats I wear involve, or reflect rather, the varying ways I make it through each circumstance of each day.

I put on my ‘professional hat’ while at work.  That hat remains devoid of my sorrow.  I put on the hat of ‘faith’ which encourages others facing a challenge.  And encourages me as well.  I wear a hat of ‘progress’ which propells my every, sorrow-filled step forward.  I wear the hat of ‘normalcy’ when my daughter and husband, and dogs, require it.  I wear, too, the hat of ‘mourning’, the black veil that fictitiously remains intact–pinned perfectly, to my coife of the day.  This is the “hat” I wish were more of a presence for the world to see, but that is not the culture of my society.

I am a woman of many hats.

I don’t think it wrong to don whichever hat is needed, in the moment it is required.  This is living.  This is life, this side of Heaven.  In fact, I think it right.  I think it honors those of whom have traveled to the great beyond before me.  I think in their state of peace, sorrow no more, and fulfilled earthly mission, my wearing of each hat pays tribute to their journey.  …and in this perspective, you may feel free to call me a “wierdo.”

I am weird.  My hats are weird.  My life is everything strange.  Your perspective of me, whatever it may be, is justified.

I also wear a cap of self pity.  This particular hat, I wear, when I step outside of myself and look at our loss from those around me.  When I go to the end of my driveway and pick up the newspaper, only to see a few of my neighbors conversing in the crisp of the morning.  They look at me and wave.  I wave back.  Yet as I return, paper in hand, to the kitchen table where I will read the news, I know their hearts are filled with sorrow for the reduction of our family unit.  I feel the eyes of “the other people.”  The idea that our new Bent life reflects the obvious–the, this can happen to you, feeling.  For when a loss is felt, close at hand, it reverberates the possibility of, it happening!

Are you able to follow this wild train of thought?  My soul feels my intention, though my use of language, at this time, seems to be failing me.

It is not a self pity that is debilitating.  As I have described above, the other hats come into play to thwart “debilitating’s” victory.  It is more the realization that my life’s reflection speaks of the possibility of sorrow’s touch.  Again, my use of language is failing me.

Should I just stop here?  With this post?  Is it too heavy a concept to pass along to the reader?  hhhmmmm…I pause to ponder.

I miss my son.  My family unit misses his presence.  And my world around me, misses our unit.  Sorrow is right, for this time.  I look forward to the day when the fictitious black veil is no longer adhered to my head.  I look forward to the day when our unit, and those connected, can celebrate the memory of Cole and the many memories his short life gave to us.

But for now, I am a woman who wears many hats.  And with that, I shall take my leave.