Archive | disabilities RSS feed for this section

All Dried Up

12 May

My last post was written in an attempt to convey the fact that I feel as if I am running on borrowed time.  Not the type of “borrowed time” that means short on life, but more the type of situation where there are so many things happening, nay converging, that when I get a moment I feel as if it’s borrowed from a future still pending.  In my own estimation, I fell short of success in conveying that concept…not only did I not take the proper initiative to dissect where I was coming from, but the thought itself is an abstract and abstracts are hard for me to process.  Hence the lazy output of my previous writing.  To be plain, my last post is downright boring.  A cop out at best.  I thank you for reading through it, and I especially thank those of you who, with loving hearts, were able to decipher through my blasé code and find the real Rivka in the mix.  You are my kindred spirits!

So I have some catching up to do…

First, the excitement of the day:  My husband, my daughter, and I are heading to France in June.  Brian (hubby) has been asked to play music at a festival in Biarritz, FR called, “Wheels and Waves.”  He is also being recruited to that country to have an art show at a gallery in the same town, galerie 13 avril de biarritz.  When he was asked to participate he said, “yes, but my wife must come along too.”  So Brian and I are having an all expenses paid trip to France, and we decided we needed our daughter to be party to the endeavor as she is fluent in the language and we are not.  Well simultaneous to the french connection came an offer from Japan.  Again, my beloved said, “I will go but not without my wife.”  So we return from France only to turn around and three days later take off for Japan.  Only this time, Esther will not be with us as she only knows how to eat Japanese, not speak it!

Which brings me to the second item of ‘new and exciting’ in the Bent (but not broken) world of Rivka B.  Upon our return from Japan, two days after our return to be exact, I will be starting a new job.  A full time job.  And though I am not quite yet at liberty to discuss the details of the position, or the employer, I am very much looking forward to this new opportunity, challenge, endeavor, direction.  I assure you, more to come on this subject later…like mid-summer, later!

Third, but not last, as result of many, many (would it be too redundant to include about a thousand more “many’s?”), circumstances and prayers (“prayers” should be in caps for emphasis!), our Bent family is graduating from the ministry we were called to thirteen years ago.  Yep, 13 years ago my husband and I knew without a doubt we were called to start an outreach ministry called, the Hotrod Church for Sinners (hotrodchurch.com).  It has been, what I like to call, a catalyst ministry–a first step, if you will, toward a life of faith (we have also  been blessed with several people who utilize it for their additional steps of faith as well).  We have met in the same pizza/bar restaurant since its inception–free of charge.  And have reached out to the people in society who feel, for whatever reason, unrecognized by the traditional church.  The ministry has become so much more than that.  It has been an extension of our family.  It is funny, I was briefly looking through the photos taken at the hospital while my son was in ICU (from the brain tumor surgery) and I thought to myself, “what a diverse and colorful bunch of people we had supporting us, what a beautiful ‘family of friends’ we have been given–many as result of the Hotrod Church.”  Now I like to joke (often), that the sinner part of the title is held by ‘yours truly’, though that part of the name came about more as a nod to the fact that we all know we are sinners and therefore don’t need to be told.  At any rate, our last service in our little pizza restaurant will be Sunday, May 26.  We are secure in the ending of this chapter, and we are excited for the next set of adventures our Lord in Heaven has for us…watch out homelessness, Brian’s got you on his radar! 🙂

Lastly (for now), is the present condition of my (our) son Cole.  The good news, he is successfully living on his own.  In fact, I will be surprised if he ever decides to come back home.  This, in and of itself, is very positive, and I have to keep reminding myself of this truth.  You see it is very difficult for my maternal eye to not fixate upon the things that aren’t so great–because it is in my nature to want to “fix” these things.  Cole’s dependency upon narcotics and the cocktail of medications he receives, greatly disturbs my soul.  Every day, I wait with anticipation to hear from him…when I do, I am thankful to have another day of assurance that he is alive.  I have come to realize that this is my lot, the lot of being the mother.  I will never have the ability to see my son through any other eyes than the maternal vision which was handed me at the time of his birth.  I will always want the closest thing to perfection when evaluating his health and welfare.  I will always utilize my critical eye with his circumstance because I am hoping for the best, most fulfilling life for my son.  But what I have realized is that my maternal eye, and all that the concept encompasses, is not necessarily what he considers as “best.”  And to that epiphany, I am learning to yield.  So I am reminded, moment by moment, that he is making it…his way.  And for today, that is a good and healthy place for him to be.  It is his process, and I will take part as I am allowed, the challenge being not to take over! 😉

Well I will close within this theme.  After all, it is Mother’s Day in the U.S.A.  And though I had hoped to be given a quiver of 10, I have been blessed with my two natural born, who just by themselves make the quiver seem quite full!  Yet in addition to the two, I have been blessed with many nieces and nephews (some of them technically cousins), young ladies who consider me a parental role model, children of longtime friends who humor me with their approval, and a  few stragglers still grasping for any loving handout that comes their way…all of which bless my soul to play a part in their lives.  Moreover, who make me realize that if my quiver of ten had in fact been given me, I would lack the capacity of mind for the dozens more I have been given in their stead.

P.s. I am sharing a piece of Hotrod Church history with the following video clip, including the fact our son is playing the drums while he was on leave from his military assignment…obviously pre-surgery.

…peace out and peace be with you…

Odds and (goofy) Ends

25 Apr

Truth is, I have written many a post while standing in front of my bathroom mirror applying the necessary makeup with which to meet the day.  But then I am off and running, in many directions, though none of which proves to be an effective method for taking off the extra 15 pounds (6.8 kilograms) that has made its home around my waist.  Now that that has been said, I say, “welcome back”…to myself!

Sheesh, sometimes just living is all I can handle; let alone formulating thought beyond “duh?”—so it has been these last few weeks.  And because of the many trains of thought that have been running through the station of my mind, I will utilize this post as a sharing ground and by doing so, hopefully return next time to musings beyond the fragments I will utilize today.  …like always, I make no promises!

  • This morning I stared at the coffee bean grinder, while it was grinding my beans, and blankly kept the button depressed while the, already pulverized (now) grounds, twirled and whirled within the encapsulated bin.  I finally caught myself and asked, “Rivka what are you doing?”  “Nuthin, why is it a bad sign when spinning coffee grounds prove entertaining?”  Let us let the answer to this one lie dormant…please!
  • Where is the summer weather I know and love?
  • We hosted my coming of age niece for a week last week; our time together was delightful.  I am exhausted!
  • Our family has learned (I say “has” because we are in fact enacting the following concept) to operate within a strange, new normal.  At least it feels strange to me.  My son’s health is poor…this is not new news.  And we have learned to operate within a crisis state by vacillating between attending to the extreme and attending to other aspects of life, simultaneously.  Let me explain.  I have learned to utilize my days’ allotment of energy to step up to whatever the occasion at hand might be.  Such as, coordinating healthcare maneuvers for my son while sharing Hollywood’s iconic locations with my niece.  In fact, I picked her up from the airport Sunday morning, drove her to my house, picked up my son and drove him to the emergency room, took him home after he received the proper treatment, returned to my house to step back into the shoes of ‘happy hostess’ and made a decent dinner which we enjoyed together.  The last time my son was taken to the ER my husband and I were attending a Bat Mitzvah, 500 miles away.  It was that day I learned how to practice this new place of normal–happy for the young lady of honor while fielding questions of concern via text.  I even danced that night.  And this past week I moved between these two vastly different planes like an old pro.  My conclusion?  Life is life…this is mine (ours).
  • A cancer diagnosis sucks.  It sucks because the looming statistics attached to the particular type are always with you, even when you ignore them.  Because of this truth, my son is scheduled for MRI’s of his brain tomorrow night.  Result of his health bouncing between bad to worse, back to bad again (at worse is when we head to the emergency room).  I miss my son.  Esther misses her brother.  We miss his joy, we miss his hope, we miss his wit.  Brian would never say something so negative!  🙂
  • It is a strange place of existence, carrying on in life while housing a broken heart…for many of us, this is normal.
  • My daughter attended a high school Prom this past Saturday evening.  I thought she didn’t care much about it, turns out I was wrong…dead wrong!  Screech, shift gears, and voila, my attention became all hers.  Thankfully I have an understanding niece!  In fact, she became integral to the cause…photographer.

    Prom photos

    Esther ready for Prom

  • I have a headache, today is the third day I have awoke to its imposing presence.  Last night Brian asked me a financial question, I told him I do not calculate well at night, nor with a headache, which made it impossible for me to pursue getting him an answer as both were a present factor.  Today he expects to revisit the topic, at least it’s morning!  In fact, it is still early.  Strange thing happened for me today (yes another one), I awoke and thought it was roughly 7a.m.  You see our electricity was turned off yesterday due to pole repairs.  As a result, my clocks (coffee pot included) are not set correctly.  And since I kept my cell phone turned off I was truly unaware of the hour.  Brian awoke and joined me as I was finishing breakfast…at, I thought, about 7:30-8:00a.m.  He checked his phone and reported it was only 7:13a.m.  Wow, I gained a whole hour!  …I wonder at what time I awoke this morning?  No wonder the spinning coffee grounds fascinated me so! 😉

Well as the Looney Tunes family of cartoons would say, “that’s all folks!”  And just as I am finishing expelling my fragmented thoughts, Brian shows me a photo of my paternal grandparents, Harry and Bessie, on their wedding day in the 1920’s.  I must now go and ponder why I don’t know more about this fascinating couple.

nostalgic family photos

Harry and Bessie

Keeping House in Purgatory

27 Jan

I like to arrange furniture.  Actually, I like to arrange, re-arrange, and flat out design rooms for functionality, efficiency, comfort, and visual delight.  Thankfully I am married to a design junkie as well.  He not only enables my inclinations, but he is a full packaged resource when it comes to any and all of my fancies–whether it be the design or the build.  Sometimes we work together to formulate a new quadrant creation, and sometimes we work as fast as thieves to get our vision to the end product before the other spouse can override the desired change.  All in all, we have loads of fun in either situation.  And we both enjoy keeping a non-cluttered environment where we can rest from the excitement of the world outside, and welcome friends and family to the Bent life as we live it.

Note: For some reason I am really struggling to write this post in English.  My thoughts are being driven by my Spanish speaking mind and translating to the Germanic language is a challenge.  …just something for you, the reader, to keep in mind as you meander through this literary presentation.

In fact, right now I sit in my living room mentally wanting to give into the call of slumber which comes as result of the sun beaming through the window, warming the sofa making the ideal location for an afternoon nap.

my sofa

The sun drenched couch

However, the longing of the mind to rest is being thwarted by the accelerative properties of the caffeine present within the large cup-o-joe I just ingested a few moments ago.  I am also unsure of what the next hour will bring for my weary mind and body, thus the trepidation of the forthcoming is keeping me from the prone position for now.  What might the next hour bring? you ask…

Well, it could mean another trek to the hospital with my son, Cole.  My poor son has suffered so much in these past 3 years, and yet he continues this route with a frequency too consistent too feel as if he has ever caught a real break.  And with him we ride, alongside his struggles, his sufferings, and his visits to the ER.  And as much as he wishes for himself that his cycle of pain, diagnostics, and medicinal ‘Russian Roulette’ would stop, he remains quite sensitive to the infliction his course imposes upon his family.  This is not a course for the faint of heart!  And though I personally feel we are in a Purgatory-like state, he feels as if this IS Hell.  I say, not quite Hell just yet because we are inching ever closer to a proper course of treatment for a decent quality of life.  I say, let us not give up our chores of dusting the furniture and vacuuming the rugs just yet.  This temporary place of torture, I believe is drawing close to its end; But we have been keeping house in this locale for so long now, I can understand why Cole is convinced it is Hell.

Now I must go and evaluate the condition of my son, who is in his room doing his best to distract his mind from the heaviness upon his body.  But before I take my leave from my free therapy of the day, I will properly give thanks to the Roman Catholic religion for providing me with the analogous place of the interim.  Without it, I just might forget where I am and get lost in the idea that we are here, in this moment, forever.

 

%d bloggers like this: